AF Organizations Other Organizations/Resources Regarding AF and Heart Rhythm Health Resources Provided by Pharmaceutical and Device Companies Government Websites Patient and Support Sites

This list of websites focusing on atrial fibrillation (AF or AFib), listed in alphabetical order by category, is intended to provide a broad range of useful information. Please contact the Heart Rhythm Society if you would like to submit a site for inclusion.

AF Organizations

• AF AWARE
  Atrial Fibrillation AWareness And Risk Education is an international awareness campaign is dedicated to gaining greater recognition of AF.
  (AF AWARE is a collaboration between the World Heart Federation, the Stroke Alliance for Europe (SAFE) and the Atrial Fibrillation Association (AFA).)
• AFA-US
  Atrial Fibrillation Association - United States of America (AFA-US) is a non-profit organization which provides information, support and access to established, new or innovative treatments for AF. Visit www.afa-us.org to access patient information or become a member of AFA-US, which is affiliated to AFA International, a global charity based in the UK.
  • AFA also maintains a moderated message board (Yahoo Groups) to provide the opportunity for patients, caregivers and family members to express any worries they may have, discuss stories and experiences and reassure each other in difficult and unfamiliar times.
• Arrhythmia Alliance
  Launched in 2004 in Warwickshire, England, this heart rhythm charity works to raise awareness and improve diagnosis, treatment and quality of life for arrhythmia patients, including those with AF, and has an extensive patient area.
• StopAfib.org
  Founder Mellanie True Hills, now cured of AF, created StopAfib.org as part of the American Foundation for Women's Health to share what she and other AF patients have learned and to provide information and answers to questions. StopAfib.org is not just for women, but for anyone — patients, families, and caregivers — dealing with the life-changing impact of AF. See also:
  • StopAfib Atrial Fibrillation Blog (For Patients by Patients)

Other Organizations/Resources Regarding AF and
Heart Rhythm Health

• American College of Cardiology — ACC and the Society have collaborated to produce AfibProfessional.org.
• American Heart Association Atrial Fibrillation Information — Detailed information about AF, its symptoms, treatments and prevention, why being diagnosed with AF matters, and more. See also:
  • American Stroke Association
• Cleveland Clinic — Information and resources provided by The Cleveland Clinic Center for Atrial Fibrillation, which offers comprehensive treatment for patients with AF.
• Journal of Atrial Fibrillation: JAFIB offers an area for AF patients, including expert advice and opinions with "Meet a Doctor."
• Medifocus Digest Alert for Atrial Fibrillation — This online publication is a expertly selected listing of the latest journal articles published in MEDLINE from credible, peer-reviewed medical journals. A free subscription allows readers to keep current with the latest medical breakthroughs for AF, including research, clinical trials and new treatment options.
• Mayo Clinic — Comprehensive overview covers symptoms, causes and treatment of this common heart disorder.
• WebMD Atrial Fibrillation Health Center — includes FAQs, health tools, advice on living with AF, and more. See also:
  • MedicineNet, Inc., owned and Operated by WebMD and part of the WebMD Network, an online, healthcare media publishing company. The AF section of the website features areas where patients can discuss symptoms and signs as well as treatments.

Resources Provided by Pharmaceutical and Device Companies

• AF Answers
  This website from St. Jude Medical is an educational resource for those affected by AF — patients, their families and friends — and those who want to learn more about Atrial Fibrillation. It addresses the various types of AF and what happens physiologically in a heart that has the condition. It also takes an in-depth look into the symptoms of Atrial Fibrillation and its causes, how the condition is diagnosed, as well as the most common treatment options available.
• AF Stat™
  AF Stat™: A Call to Action for Atrial Fibrillation is an initiative sponsored by sanofi-aventis U.S. LLC designed to raise awareness of AF as a complex, costly, progressive and often debilitating disease. It also is calling for and helping promote a change in attitudes and behaviors to enhance AFib understanding, diagnosis and management.
• Facing AFib: Get Serious About Stroke
  Daytime TV star Susan Lucci and her husband Helmut Huber learned he is one of the estimated 2.3 million Americans living with the condition, which can increase the risk of stroke nearly five-fold. The couple partnered with Boehringer Ingelheim Pharmaceuticals, Inc., National Stroke Association and StopAfib.org in 2010 to launch Facing AFib, a multi-year program to educate Americans about AF, to encourage those with the condition to take steps to help reduce their stroke risk and to facilitate improved communication between patients and healthcare providers. The site includes a stroke risk assessment tool.
• Medtronic Atrial Fibrillation Patient Info
  Medtronic's website includes information on AF as well as catheter ablation as a treatment
• My Fast Heartbeat
  This site, intended for U.S. visitors, is published by Biosense Webster Inc. and focuses on cathether ablation as a treatment for AF
• 1 Mission 1 Million: Getting to the Heart of Stroke
  Boehringer Ingelheim GmbH created this website, intended to provide information to an international audience outside the USA and UK. 1 Mission 1 Million is a global campaign to raise awareness of atrial fibrillation and its link to stroke. €1 million was available to fund community-driven projects, chosen by online voters, that take action against AF-related stroke by contributing to this goal. More than 2 million votes were cast to decide which of the 184 projects deserved funding to educate about AF-related strokes.

Government Websites

• The National Heart, Lung, and Blood Institute
  The NHLBI AF Information section provides extensive public health information about AF, AF types, diagnosis, treatments and more.
• National Institute of Neurological Disorders and Stroke
  NINDS is the leading U.S. federal agency directing and funding research relevant to AF and stroke prevention. The NINDS conducts basic and clinical research in its laboratories and clinics at the National Institutes of Health (NIH), and also supports additional research through grants to major medical institutions across the country. Much of this research focuses on finding better ways to prevent, treat, and ultimately cure disorders such as AF that can increase the risk of stroke.

 Patient and Support Sites

• A-fib.com
  The site's author, Steve S. Ryan, Ph.D., underwent Focal Catheter Ablation (Pulmonary Vein Ablation) in April 1998, curing his AF. Written from a patient's point of view, the site aims to translate medical terms and research into everyday language.
• AFIB Support Group
  Yahoo Group supporting people who are or have previously been challenged with AF as well as family and friends to join in discussions. Administrators note they are not a medical site and do not provide and/or endorse medical advice or procedures; the purpose is to share experiences in a kind and caring manner. See these additional Yahoo Groups:
  • P.AtrialFibSupport — the P in the name stands for permanent, persistent or paroxysmal, three of the broad types of AF
  • A-fibcures — Focuses on information on various non-pharmaceutical treatment procedures and their effectiveness.
• DailyStrength Afib Support
  DailyStrength, with more than 500 communities dedicated to specific medical and life challenges, was built so people could simply and easily communicate their progress with friends, family, supporters, and have those people respond with encouragement and help as well as find others facing the same circumstances, and exchange experiences, treatments and more within a safe community setting.